A Twisted Fate: My life with Dystonia

Can a body turn against itself and still find the strength to laugh?

At just seven years old, Brenda Currey Lewis was an active, typical child. But in the summer of 1974, her trajectory changed forever when a sudden, baffling neurological invader took hold of her muscles. Diagnosed with generalized dystonia-a rare and debilitating movement disorder that forces muscle groups to twist, tug, and lock the body into abnormal postures-Brenda was wheelchair-bound within a single year. For over fifty years, she has navigated the unpredictable physical and emotional storms of this incurable condition. Yet, while the disorder wreaked physical havoc, it remained powerless against her resilient spirit. A Twisted Fate is a definitive and deeply moving dystonia memoir, written with a rare combination of raw candor and a delightfully quirky sense of humor.


An Uplifting Journey of Resilience, Humor, and Medical Advocacy

This engaging chronic illness memoir pulls back the curtain on the daily realities of living with dystonia, offering a nostalgic look at growing up with a severe disability starting in the 1970's. Brenda guides readers through the personal transitions of navigating life with physical challenges, balancing deep emotional struggles with a lighthearted perspective.


Unlike clinical medical texts, Brenda's story highlights:

-From Bicycles to Wheelchairs: The transition of losing physical mobility in childhood and reclaiming independence on her own terms.
-Navigating the Healthcare Labyrinth: Honest encounters with a medical establishment that possessed few answers for a complex, little-known disorder.
-The Power of Humor in Adversity: How self-deprecation, laughter, and relentless optimism became her ultimate survival tools.
-A Rich Historical Journey: A reflective look at how society's recognition of disability has evolved over the last four decades.


Setting the Record Straight: A Resource for Patients and Families

To address the critical need for patient education, this work balances personal storytelling with medical research. Brenda has dedicated a specialized chapter to providing factual resources, making it a standout entry among neurological disorder books. It serves as both an intimate biography and an educational guide for families, caregivers, and medical professionals seeking to understand the patient journey.


A Beacon of Hope for the Rare Disease Community

Ranks highly among modern disability autobiographies, this work is celebrated by readers and advocacy groups worldwide. Whether you are searching for inspirational disability stories to lift your spirits, seeking a realistic look at neurological challenges, or looking to support global health awareness, this unforgettable rare disease memoir is an essential addition to your library.

Join Brenda on her extraordinary journey from doubt to determination. Scroll up, select your format, and claim your copy of this life-affirming story today.

Author: Brenda Currey Lewis
Publisher: FriesenPress
Published: 11/04/2013
Pages: 256
Binding Type: Paperback
Weight: 0.65lbs
Size: 8.40h x 5.40w x 0.60d
ISBN: 9781460220443

About the Author
Lewis, Brenda Currey: - Brenda Currey Lewis is an author, patient advocate, and community leader who has lived with generalized dystonia since 1974. Following her childhood diagnosis, she turned her personal challenges into a lifelong mission of public education and advocacy.

Brenda served as the President of the Edmonton Dystonia Support Group for nearly thirty years, where she established vital support networks and provided peer mentorship to newly diagnosed patients navigating the complexities of neurological movement disorders.

Her work is deeply integrated with leading national organizations, including the Dystonia Medical Research Foundation (DMRF) Canada and global movement disorder advocacy networks.

A Twisted Fate: My Life with Dystonia is her premier literary contribution, written to bring visibility to hidden disabilities and to provide an empathetic, humorous, and authoritative resource for readers seeking authentic accounts of neurological resilience.

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