Ethics and Research with Children: A Case-Based Approach

Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving
their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled?

Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research.
Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk
while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis
and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential
reading for those involved with pediatric research in any context.


Author: Eric Kodish
Publisher: Oxford University Press, USA
Published: 12/24/2018
Pages: 340
Binding Type: Hardcover
Weight: 1.30lbs
Size: 9.40h x 6.10w x 0.90d
ISBN: 9780190647254

Review Citation(s):
Choice 10/01/2019

About the Author

Eric Kodish, MD is Professor of Pediatrics at the Lerner College of Medicine, Cleveland Clinic.

Robert M. Nelson, MD, PhD is Senior Director of Pediatric Drug Development in the Child Health Innovation and Leadership Department (CHILD), Johnson & Johnson.

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